Over 600 guests expected at Long Island Gala to support families affected by Williams Syndrome; Volunteers beat the odds and celebrate an outpouring of support for the Williams Syndrome Association
(Great Neck, N.Y.) What was expected to be a small-scale event – dinner and dancing for 200 people, has turned into a sold out gala for more than 640 people! The attendees, many of whom had never heard of Williams syndrome, will gather to support the programs of the Williams Syndrome Association (WSA) at Leonard’s of Great Neck on February 21st. Guests will be invited to participate in several auctions and fundraising opportunities prior to dinner and live entertainment provided in part by adults with Williams syndrome. The evening’s theme is “Celebrate the Children in our Hearts.”
Funds raised through the gala will directly support the programs of the Williams Syndrome Association which include quarterly newsletters, a national convention, music camps, regional programming, research funding and a wide variety of resources for families.
Williams syndrome (WS) is a genetic disorder affecting 1 in 10,000 births. Individuals with WS are missing 26-28 genes on chromosome #7. More than 75% of individuals have mild to severe cardiovascular problems, and virtually all have developmental delays and learning disabilities. Individuals with Williams syndrome also tend to have good verbal abilities, overly friendly personalities and a love for music. The WSA is the only group in the United States devoted exclusively to enriching the lives of individuals and families affected by Williams syndrome and related characteristics.
Rob and Jill Dell’Unto of Rockville Centre were inspired to get involved in fundraising for the WSA when their adorable 2 year old daughter, Julia, was diagnosed with Williams syndrome(WS). Although determined to make the event a great success, they had no idea that it would sell out. The Dell’Unto family and the Williams Syndrome Association are truly amazed at the way a community has rallied together to make a difference during an economic crisis which is shrinking most fundraising events.
For more information please visit: www.williams-syndrome.org