(Long Island, NY) The Scleroderma Foundation / Tri-State Chapter will host a Men’s Scleroderma Support Group, an Initial Meeting for “A New Support Group for Men with Scleroderma – You are not alone” on Wednesday, February 26, 2014 at 6pm. The meeting will take place at the Hospital For Special Surgery, 8th Floor, Rm 821W.
- Who: Scleroderma Foundation / Tri-State Chapter – Men’s Scleroderma Support Group
- What: New Support Group for Men with Scleroderma – You are not alone.
- When: Initial Meeting – Wednesday, February 26, 2014 at 6pm
- Where: Hospital For Special Surgery, 8th Floor, Rm 821W
About Men & Scleroderma
Because scleroderma manifests itself in a very unique way in men, their issues and concerns are unique as well. This is likely why we see so few men come to support group meetings on a regular basis. There are also other issues unique to the male gender such as upbringing, expectations and need to control emotions like sadness, grief, and signs of weakness that are likely barriers to their participation. These issues however cause more stress, adding to the fatigue and pain that most people with scleroderma experience.
This new support group will be just for men with scleroderma and will be held with the support of the Scleroderma, Vasculitis and Myositis Treatment Center at the Hospital for Special Surgery.
What is Scleroderma?
Literally, scleroderma means “hard skin”; however the disease is better defined as being characterized by a hardening of the body’s connective tissue. Approximately 300,000 individuals in the US are affected by the disease. An estimated 29,000 of them live in the Tri-State Chapter’s New York, New Jersey and Connecticut service area.
About the Scleroderma Foundation / Tri-State Chapter
The Scleroderma Foundation/Tri-State Inc., Chapter is a 501(c)(3) non-profit organization serving New York, northern New Jersey and Connecticut. The chapter has a three-fold mission which is to promote the welfare of individuals and families affected by scleroderma, increase public awareness and support scleroderma research.
For more information please contact Eric Goldstein, Support Group Leader, at 646-275-4178, visit http://www.sclerodermatristate.org or email: ScleroMen@scleroderma.org.
